The story of living with a baby with Krabbe Leukodystrophy.
Saturday, July 3, 2010
Anaya pre-Krabbe Video
Before Anaya became ill she would smile and coo. She could see and she could move. She used to copy the funny sounds I made. This video is our only video of Anaya when she was healthy. It is a very special moment to me. I have decided to share it with you.
Anaya's so beautiful, I am so affected by what your family is going through,if it were me...I would be crying my eyes out most of the time, esp. looking back. It's great that you have one video of your little girl. Very special to share. Thoughts and prayers.
She is wonderful! Thank you for sharing your special moment and your thoughts. You inspire me to be the best mother I can be. You are an amazing mother.
Thank you so much for sharing this. Focus on remembering the good. I remember our first meeting a little over a year ago when everything was a beautiful dream and none of this had been a thought. If there is anything you need let me know and if you need to vent oe cry give me a call
Anaya's so beautiful, I am so affected by what your family is going through,if it were me...I would be crying my eyes out most of the time, esp. looking back. It's great that you have one video of your little girl. Very special to share. Thoughts and prayers.
ReplyDeleteshe is still so cute and vibrant! Thanks for sharing :)
ReplyDelete-Danielle.
She is wonderful! Thank you for sharing your special moment and your thoughts. You inspire me to be the best mother I can be. You are an amazing mother.
ReplyDeleteThank you so much for sharing this. Focus on remembering the good. I remember our first meeting a little over a year ago when everything was a beautiful dream and none of this had been a thought. If there is anything you need let me know and if you need to vent oe cry give me a call
ReplyDeleteThat's a great video! I can see her in my mind's eye cooing like that again someday. Believe in the miracle! I do.
ReplyDeleteRemi