We arrived here. The BC childrens/ womens hospital is a MAZE! I feel like a mouse that has to memorize the little twists and turns. It is not easy to find things here. Good thing they hand out maps at the front.
It's been a crazy long day that I want to fill you in on but I'm too tired.
Suffice it to say that Anaya is doing well. She is not having any health deterioration at the moment. We are here to get a full assessment and access resources for her that we cannot get in Nelson.
We are looking into Bi-pap apnea support and also pain relief/management and physiotherapy support - as well as how to get aids for her such as a wheelchair and special car seat.
I've been so busy taking care of her the last few days that I've let myself get run down. I really need some help and support. I could really use a break. I need sleep. I need a kid-free day. I really hope we can get into "Canuck Place". http://www.canuckplace.org/ It's a hospice for palliative kids here in Vancouver. They provide care so that parents of special kids can have a break from having to manage so much all the time.
I'm so exhausted. It's 1 am here and Anaya's due for a feed. They don't have the nursing resources to let me have the night off...
Thank God for friends like Kyle, Cam and Katie for being my Hero's and filling my day with awesomeness (friendship, food, phone charger, laughter and LOVE!) You guys are the best.
Poor little love. Will be thinking about her. XO
ReplyDeletesending you love, love, love.
ReplyDeleteSweet baby girl. I too have a little girl a month older then Anaya. I will be saying a few prayers for her everyday.
ReplyDeleteWhat happened Camara? The little warrior..come on princess!!!
ReplyDeleteWe're all praying for Anaya. We hope she's doing well. She's in good hands at BC Children's Hospital. All our love. XOXOXO
ReplyDeleteDarrin, Blake & Jacqueline
Camara, please post here if you need something - anything - while in Vancouver, and I will try my best to help. Sending lots of love and hugs. xo
ReplyDeleteBeautiful girl please get your miracle. Sending lots of healing prayers and energy.
ReplyDeleteThank you for filling us in. Really happy to hear that Anaya is doing well and that the BC Children's hospital is giving her the support she needs. We pray that you get into Canuck Place so you get some much needed rest and time to yourself. I wish I could be there to help you. I can only imagine how exhausted you are. Hugs and kisses to the warrior princess and her incredible mom!
ReplyDeleteJacqueline
Thanks for your post, Camara. I think I can speak for everyone who reads your blog that we were all worried about the little princess but are happy to know she is doing well. You are in the right place! I'm glad to hear Anaya will be assessed for some much needed supports. Fingers crossed and lots of prayers that you'll get into Canuck House and get some rest. A tired and worn out Mama is a tired and worn out Mama :) Take good care of yourself. Happy to know Anaya is being well taken care of. Thoughts and prayers for you both!
ReplyDeleteXOXO
You are my hero. I stumbled upon your blog about a month ago. I too, have children with special needs though not as difficult as yours, but still exhausting and challenging. Ever since then, whenever I feel overwhelmed, I think of you and it brings me courage. Thank you for sharing your life with the world. You and your family are continually in my thoughts and prayers.
ReplyDeleteI wish that they had better resources there in BC like they do here in Nashville at Vanderbilt Children's Hospital. I can't believe that they don't have the nurses for someone to come and feed her. Strange. I am sorry about this. If I lived in or near BC, I would help you out and even let you stay with us if you needed to. My heart goes out to you, your daughter, and your family.
ReplyDeleteCamara, I hope you do get into the Canuck Place so you can have a bit of much needed rest and relaxation!! My thoughts are with you, I hope you can get a better car seat for Anaya so the trip back to Nelson will be better than the trip down to the coast. Much love, be well, thinking of you and Anaya xox.
ReplyDeleteCamara, I sent an email to your gmail account with my contact information. I'm in the Lower Mainland and can try my best to help you with whatever I can. xo
ReplyDeleteThoughts and prayers to you, Anaya, and your family! Be strong!
ReplyDelete