The story of living with a baby with Krabbe Leukodystrophy.
How is the cough assist working out Camara?
Hi Eric,My Dr talked me out of it. She said it's torture for the kids and that the kids who are able to try desperately to get away. Screaming and crying. I don't want to do that to Anaya.
I've been following your blog for months! You are a wonderful woman, and your two beautiful daughters are lucky to have you as their mom. I just wanted to comment on this picture - I can't believe how old she looks here!! What a big girl! So so gorgeous...
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How is the cough assist working out Camara?
ReplyDeleteHi Eric,
ReplyDeleteMy Dr talked me out of it. She said it's torture for the kids and that the kids who are able to try desperately to get away. Screaming and crying. I don't want to do that to Anaya.
I've been following your blog for months! You are a wonderful woman, and your two beautiful daughters are lucky to have you as their mom.
ReplyDeleteI just wanted to comment on this picture - I can't believe how old she looks here!! What a big girl! So so gorgeous...