Tuesday, May 10, 2011
BC Children's Hospital
We arrived here. The BC childrens/ womens hospital is a MAZE! I feel like a mouse that has to memorize the little twists and turns. It is not easy to find things here. Good thing they hand out maps at the front.
It's been a crazy long day that I want to fill you in on but I'm too tired.
Suffice it to say that Anaya is doing well. She is not having any health deterioration at the moment. We are here to get a full assessment and access resources for her that we cannot get in Nelson.
We are looking into Bi-pap apnea support and also pain relief/management and physiotherapy support - as well as how to get aids for her such as a wheelchair and special car seat.
I've been so busy taking care of her the last few days that I've let myself get run down. I really need some help and support. I could really use a break. I need sleep. I need a kid-free day. I really hope we can get into "Canuck Place". http://www.canuckplace.org/ It's a hospice for palliative kids here in Vancouver. They provide care so that parents of special kids can have a break from having to manage so much all the time.
I'm so exhausted. It's 1 am here and Anaya's due for a feed. They don't have the nursing resources to let me have the night off...
Thank God for friends like Kyle, Cam and Katie for being my Hero's and filling my day with awesomeness (friendship, food, phone charger, laughter and LOVE!) You guys are the best.