We are home again now. It turns out Anaya has a urinary tract infection. Her painful winces might have been when she was urinating. Her breathing is still an issue. The Dr's think that her apneac spells have gotten worse. Sometimes she pauses for quite a long time. She then gets "dusky" or "blue lipped". We have been giving her oxygen and she might need a bi-pap oxygen supply. which is pressurized and would help her get a full breath.
It's late. I just wanted to write that Anaya is alright. She's on antibiotics and is sleeping soundly. I think we are meeting with a respiratory therapist this week, once our Dr. sets it up.