Saturday, October 30, 2010

October 30, 2010

Last night my older daughter had a Halloween slumber party. Anaya seemed to enjoy listening to the ruckus of little girls screaming and running through the house. I had fun playing games with them and freaking them out by putting severed plastic fingers in the pasta dinner. I should have made less, because after that they wouldn't eat it. I had to bribe them with cookies.

Anaya has had a good couple of days since our last trip to the hospital on Tuesday. Tuesday was awful. We couldn't get her feeding tube through her nasal passage. She ended up with a bleeding nose. This has never happened before. I've been doing her tube insertion every week for a year, and this is the first time we could not get it in either side. Both the nurse and I tried. So we took her in to see the pediatrician, who said her nasal passages are swollen and blocked.

I started having nightmare imagery of an emergency trip to the childrens hospital, but my fears were quickly put away when the Dr said we could put the feeding tube in her mouth. She placed it with ease and we were able to feed the baby. Phew!!

On November 18 we have a surgery consultation with Alberta childrens for a G-tube again. Maybe this time they will deem her stable enough to proceed with it.


  1. Hey sweet-stuff.
    I feel for you and Anaya. Sweet girl, that must have been heart wrenching to see her little nose in pain. I wish I could do more to help your family Camara. Just know that you all are always in my thoughts. I love you. xoxox

  2. Hey Camara. A g-tube, as daunting as it looks can be a blessing, since she will need more nutrition. By the way, because of your problems with the milk have you tried to introduce her to things like coconut milk, goat's milk and whole sesame paste (tahina: a teaspoon diluted with a few tablespoons of water). That and olive oil is what segev lives off of (with the ketogenic diet). I'm just saying there may be nutritious foods out there you haven't tried yet. Segev is thriving on it even though it sounds incredible.
    All the best.

  3. I will cross my fingers that they allow you to proceed with the g tube surgery this time. We are thinking of you always.

  4. Camara- thank you for sharing yourself so authentically. You and the wise little sage Anaya are so generous in spirit and lessons... I just sat and read through all of your blog entries and have been moved to tears by your courage, Anaya's sweet courage, and by your dedication to the present moment. Michelle and I are sending love and prayers. Of course please let me know if there is anything that I can do for you... you and Anaya have done so much for me.

    Love. Love. Love.


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