tag:blogger.com,1999:blog-5541570168728565652.post7402018013019017665..comments2023-12-13T18:49:49.853-08:00Comments on Healing Anaya: November 18, 2010Camara Cassinhttp://www.blogger.com/profile/04619203671585191480noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-5541570168728565652.post-11088607435986507142010-11-19T07:30:44.555-08:002010-11-19T07:30:44.555-08:00Hi Camara!
My name is Katie Almy and my daughter ...Hi Camara!<br /><br />My name is Katie Almy and my daughter Karis also has infantile onset Krabbe. She is a vibrant 16 month old :) I was wondering if your precious Anaya has had the chance to meet Dr. Maria Escolar at University of North Carolina in Chapel Hill? She knows more about Krabbe disease than anyone in the world and has done and incredible job managing the care of our little fighters. Her passion right now is finding TREATMENT!! She is one child away from completing a study that will release the GALC enzyme for clinical trials.<br /><br />Either way, I know Anaya could do nothing but benefit from meeting with Dr. Escolar. She is passionate about helping our children... and she's brilliant.<br /><br />If you'd like to read more about Karis and/or her experience with Dr. Escolar, please visit her blog at www.karisalmy.com under "The Latest on Karis." <br /><br />Please don't hesistate to contact me if you're interested in knowing more- or just want to chat :)Katie Almyhttp://www.karisalmy.comnoreply@blogger.comtag:blogger.com,1999:blog-5541570168728565652.post-11443143657760593292010-11-18T19:47:31.797-08:002010-11-18T19:47:31.797-08:00hoping your not too frusterated by the weather and...hoping your not too frusterated by the weather and that you guys can change your appointment easily/things go smoothly! keep going! at least all the milk will stay nice and frozen! ~heatherAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5541570168728565652.post-64491584105610815782010-11-18T19:44:50.117-08:002010-11-18T19:44:50.117-08:00Thinking about you and hope you get to your appoin...Thinking about you and hope you get to your appointment.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5541570168728565652.post-18604475132420548302010-11-18T09:26:35.612-08:002010-11-18T09:26:35.612-08:00Really hope you guys manage to get here for this a...Really hope you guys manage to get here for this afternoon!<br />xAnonymousnoreply@blogger.com