Monday, June 27, 2011
A girl with Leukodystrophy that I grew to love through our online leukodystrophy group passed away on Friday morning. Elaina's mom Gabi was always posting quotes about how being the mother of a special needs child made her a better, stronger, deeper human being. They always made my day.
I dedicate this one I wrote for Anaya to Elaina:
I am the mother of a child with special needs.
Everyday I see life through the eyes of blind,
the unmoving and the mute. Everyday I experience
more of life than most people with five senses.
Every day she loves me is worth a lifetime of experiences.
I wouldn't trade her for a healthy child
Because she is exactly what I needed
She is my teacher in this life
My child with special needs.
So much love to Gabi and Family.
There is a Balloon Release for Elaina on Saturday at 3pm Eastern time. Anaya and I will be sending something special up for Miss Elaina. The girl with the beautiful smile and the incredible hair!